Home Latest Stories Celine Dion has Stiff-Person Syndrome. What is it and how is...

Celine Dion has Stiff-Person Syndrome. What is it and how is it treated

The announcement left open many questions about the incarceration.

Singer Celine Dion halted all of her performances after being diagnosed with Stiff Person Syndrome, drawing attention to the rare disorder.

The five-time Grammy winner posted an emotional video on Instagram explaining her decision to postpone her 2023 tour.

She said, “I miss seeing all of you on stage, performing for you. I always give my 100 per cent whenever I do my shows, but my condition is not allowing me to give that to you right now.” Is.”

The announcement left open many questions about the incarceration.

What is Stiff Person Syndrome?

Stiff person syndrome is a rare neurological disease that causes progressive muscle stiffness and painful spasms, which can be triggered by a variety of things, including sudden movement, cold temperatures, stress or unexpected loud noises, according to Johns Hopkins Medicine. One of the biggest problems is falling, said Scott Newsome, director of the Stiff Person Syndrome Center at Johns Hopkins Medicine, in an explanatory video on the disease.

Scientists don’t know exactly what causes it, but the disorder has characteristics of an autoimmune disease.

What is the outlook for people diagnosed with stiff person syndrome?

Newsom said that from the time symptoms begin, it can take about seven years for people to receive a diagnosis. The prognosis varies from person to person as symptoms can vary widely. Over time, symptoms may worsen and it becomes more difficult to walk or do daily tasks. As stiff person syndrome gets worse, the risk of falls increases, and some people may need to use a cane, walker, or wheelchair.

How rare is Stiff Person Syndrome?

The disorder affects one or two people in 1 million, according to Johns Hopkins Medicine. However, the true rate may be much higher, as the symptoms may reflect many other medical problems.

Newsom said the syndrome mostly affects adults in their middle to late years, and women are more commonly affected than men. While the first case was called Stiff Man Syndrome, the patient was actually a woman. Patients who are diagnosed are most likely to have an autoimmune disorder such as type 1 diabetes.

What is the treatment for Stiff Person Syndrome?

There is no cure for Stiff Person Syndrome and its cause is unknown. Only a few hospitals, including Johns Hopkins Medicine, Yale Medicine and the Cleveland Clinic, specialize in the disorder, so patients may need to travel frequently to see a specialist and receive personalized treatment.

Doctors prescribe medications to manage symptoms and pain, such as muscle relaxants, steroids, and sedatives. Newsom said he is also trying other treatments, including giving patients Botox to help with muscle stiffness and spasms. As well, patients will also be treated with therapies that target their immune systems, and are urged to seek physical therapy, including heat, ultrasound, and deep-tissue therapy. Some patients find nonmedical treatments such as acupuncture helpful.

(Except for the headline, this story has not been edited by NDTV staff and is published from a syndicated feed.)

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